10. Fulfilling My Sister’s Un-Bucket List
By Kristen Brockman
When my sister passed away last year from cystic fibrosis, my family discovered that the computer with her list of requested arrangements had been wiped out. Little did I know, the damage control we did in the wake of this would take me on a very special journey. Read the full post.
9. Striving for the Impossible: Caring for My Wife With CF
By Ray Poole
How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt. Read the full post.
8. Setting the Record Straight About Coughing Up Blood
By David Orenstein, M.D., M.A.
Many people with cystic fibrosis experience hemoptysis. Although that can be serious and is often frightening, most often it’s not as serious as you might think. Let me set the record straight. Read the full post.
7. Why Being a Mom of 2 Kids With CF Sometimes Means Watching Your Attitude
By Kimberly Houston, MSN, BSN, CPNP-PC
As the mother of two girls with cystic fibrosis, the time-consuming routine can wear down on you and cause frustration. Although CF can be challenging, it’s important that I keep my attitude toward the disease in check because I know it will ultimately shape how my kids approach their lives with CF. Read the full post.
6. Looking for Answers When I Don’t Know the Questions
By Jesse DaCosta
Shortly after my fiancée, Ashley, told me about her cystic fibrosis, we were engaged. Months later, she passed away, leaving me to figure out what I could have done differently and how to cope. Read the full post.
5. Understanding the Differences in Survival Between Canadians and Americans With CF
By Christopher Goss, M.D., M.Sc. & Anne Stephenson, M.D., Ph.D.
An analysis of CF patient registry data from the United States and Canada found that Canadians were living about 10 years longer than Americans. Two of the study authors discuss the findings and offer some possible reasons for the results. Read the full post.
4. Dealing With Awkward CF Situations
By Mara Cray
Although having cystic fibrosis can lead to awkward situations, dealing with it with humor and grace has helped me put them in perspective. Read the full post.
3. Deciding to Have a Second Child When Your First Child Has CF
By Rachael Havey
My husband and I had always said that we would either have no kids, or we would have two. But, when our first child was diagnosed with cystic fibrosis, we were suddenly faced with a difficult decision. Read the full post.
2. I Have New Lungs and I Still Have CF
By Rima Manomaitis
I had a lung transplant earlier this year and, although I’m able to do more physically than I could before my transplant, I still have cystic fibrosis. I still need support -- support from the CF community, from the CF Foundation, and from you. Read the full post.
1. Updates From a School Nurse With Three Students With CF in One School
By Rachel Jackson, RN
About a year and a half ago, I started preparing for three students with cystic fibrosis at the school where I work as a school nurse. Here’s an update on how things have been going. Read the full post.
