Statements, Letters, and Regulatory Comments

Statements, Letters, and Regulatory Comments

By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.

Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.

Drug Pricing and Access CF Foundation Comments on Proposed Legislation to Create a Prescription Drug Affordability Board in Virginia

In a letter to the Virginia Senate Committee on Commerce and Labor, the Virginia House Committee on Labor and Commerce, and all members of the House of Delegates, the Cystic Fibrosis Foundation provided feedback on SB 274/HB 570 which would establish an affordability board with the goal to improve access to and affordability of care for Virginia

Feb. 23, 2024