By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
In a letter to the Ohio House Insurance Committee, the Cystic Fibrosis Foundation expressed its support of HB 130 to streamline prior authorization requirements and urged the committee to lower the gold carding threshold for prescribers.
The CF Foundation sent a letter of support to Ohio’s Public Health Policy Committee supporting House Bill 177, which would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
CF Foundation letter to the Ohio governor and state legislature thanking them for funding the Children and Youth with Special Health Needs program and Ohio Medicaid in the 2024-2025 budget.