Today, the United States Supreme Court issued a decision in California v. Texas, dismissing the case and ultimately protecting key provisions of the Patient Protection and Affordable Care Act (ACA).
This decision marks the end of a three-year court case that challenged the health care law after repeal of the individual mandate in December 2017.
Since being passed more than a decade ago, the ACA has fundamentally changed the way people with cystic fibrosis access care and treatment by providing protections that were not previously available. Among other things, the law prohibits insurers from denying patients coverage because they have cystic fibrosis and bans insurers from imposing annual and lifetime limits on coverage. The ACA has also expanded access to coverage by allowing young people to remain on their parents' plans until age 26 and increased coverage for millions of Americans through Medicaid expansion.
"The Affordable Care Act is a cornerstone of the American health care system. We commend the U.S. Supreme Court's decision which will preserve safeguards and ensure continued access to treatments and care for millions of Americans, including people with CF," said Mary Dwight, chief policy and advocacy offer of the CF Foundation.
The CF Foundation has actively engaged in protecting provisions for those living with cystic fibrosis. As recently as early 2020, the CF Foundation joined an ad-hoc coalition of patient groups in filing an amicus brief and issued a statement urging the Supreme Court to swiftly take up the health care case. The group issued a statement in November urging the Supreme Court to prioritize patients and uphold the ACA.
While today's news affirms the availability of and protections within health insurance plans for those living with CF, the CF Foundation recognizes the need to build upon the progress made by the ACA. The CF Foundation continues to educate lawmakers about the vital nature of the law and opportunities to improve upon it, including increased subsidies for people who purchase marketplace coverage and other proposals to make coverage more affordable.
As we work to build upon the progress of the ACA, the CF Foundation invites members of the community to share their stories about the impact of the Affordable Care Act. Our work means nothing without the powerful stories from people with CF and their families to drive home the human impact of policy changes.