As part of the CF Foundation's annual March on the Hill, volunteers from 38 states attended more than 270 meetings with members of Congress to tell their elected officials what they could do to help the cystic fibrosis community find a cure and improve the lives of people with the disease.
“Advocacy plays a vital role in the Foundation's mission to find a cure for cystic fibrosis,” said Robert J. Beall, Ph.D., president and CEO of the Foundation, on the morning of the event. “By building relationships with elected officials, we create champions in Congress for the CF community that can help move us one step closer to making important policy changes a reality.”
In addition to sharing their personal CF stories and highlighting the needs of people with CF, volunteers asked their congressional representatives to co-
Volunteers also pushed for greater funding for the National Institutes of Health (
Representative Tom Marino (R-PA), co-chair of the Congressional Cystic Fibrosis Caucus, thanked volunteers for their efforts at the opening reception, emphasizing the importance of sharing powerful, personal stories about CF with elected officials.
Senator Edward Markey (D-MA) and Representative John Fleming (R-LA) also shared inspirational words with the group of advocates, discussing the importance of their efforts in educating the congressional community about cystic fibrosis and inspiring elected officials to help make a difference.
“I am so grateful to be able to come to Washington, D.C. and advocate for my granddaughter and all people living with CF,” said volunteer Reva Ayala of Texas. “It's empowering to know that by meeting with members of Congress, I and other advocates are able to help make a lasting impact on CF families across the country.”
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Learn more about how to set up a meeting with your elected officials to talk about how they can support the CF community.