A growing number of CF patients are having difficulty affording the cost of their medical care, a recent study found.
The online survey of cystic fibrosis patients, conducted annually by Shugoll Research since 2007, gathers information on health coverage,
While more than 98 percent of people with CF have at least one type of insurance, 1 in 4 have delayed care or skipped treatments due to cost.
To help CF patients and families combat cost and coverage obstacles, the CF Foundation has comprehensive patient assistance resources, including the Mutation Analysis Program (MAP), established earlier this year. The free program helps people with CF determine which
“We know that managing this disease can be a challenge and, oftentimes, overwhelming,” said Robert J. Beall, Ph.D., president and CEO of the Foundation. “At the Cystic Fibrosis Foundation, we are committed not just to developing new drugs, but also to helping patients get access to the care and treatment they need to live longer, healthier lives.”
For more information or questions about the survey, email publicpolicy@cff.org.