By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
The Cystic Fibrosis Foundation joined the CDC Coalition in a letter to leaders of the House Appropriation Subcommittee on Labor, Health, Human Services, Education, and Related Agencies, urging them to include $11.581 billion for the Centers for Disease Control and Prevention in the Fiscal Year 2025 budget.
In a letter to the President Pro Tempore and Majority Leader, the Cystic Fibrosis Foundation thanked the Senate for their continued support of the Adult CF Assistance Program and urged that they use unspent funds appropriated for people with CF in previous years to extend the program past March 31.
The Cystic Fibrosis Foundation joined patient and health groups in writing a letter to House appropriators, asking they ensure the National Institute of Allergy and Infectious Diseases receives boosted funding needed to meet its critical, multi-faceted mission.
CF Foundation joins 1,098 organizations strongly urging Congressional leadership to finish the FY24 appropriations process and adopt the bipartisan Senate funding framework as a starting point for final negotiations.