Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Created in memory of Dr. Richard C. Talamo, the Talamo Award recognizes individuals who have spent their careers researching and caring for people with cystic fibrosis and whose contributions have altered the course of this disease.
The Cystic Fibrosis Foundation created the Richard C. Talamo Distinguished Clinical Achievement Award to recognize individuals who, like Dr. Talamo, have dedicated their careers to researching and caring for people with cystic fibrosis and whose
contributions have altered the course of this disease.
Dr. Talamo pursued a career in pediatrics and became an NIH clinical fellow in the laboratory of the pioneering cystic fibrosis researcher, Dr. Paul di Sant'Agnese. This experience led Dr. Talamo to develop a lifelong passion for understanding CF and
caring for those with the disease.
While a professor of pediatrics at Johns Hopkins University, Dr. Talamo became deeply committed to the mission of the Cystic Fibrosis Foundation and served in many capacities, including on the medical advisory committee and board of trustees.During this
time, he helped raise interest in cystic fibrosis and encouraged qualified researchers to focus on the disease. Dr. Talamo later became chairman of pediatrics at Tufts University School of Medicine.
The 2018 Richard C. Talamo Distinguished Clinical Achievement Award was presented to George Z. Retsch-Bogart, M.D., professor in the division of pediatric pulmonology at the University of North Carolina at Chapel Hill (UNC); co-director, UNC
Therapeutics Development Center; and medical director of the clinical and translational research center of the North Carolina Translational and Clinical Sciences Institute.
Dr. Retsch-Bogart was honored for his significant contributions to CF clinical research, including his work as the lead investigator for the development of inhaled aztreonam (Cayston®) and as chair of the steering committee for the pivotal
Pseudomonas aeruginosa eradication trial, EPIC.
He also was recognized for his 12 years of dedicated service as the faculty director of the Therapeutics Development Network (TDN),
where he developed the advanced training program, EQUIP-CR, for TDN research teams. Dr. Retsch-Bogart also led efforts to coordinate clinical trials between the TDN and the European Cystic Fibrosis Clinical Trials Network and is the chairman of the
Clinical Research Executive Committee.
Dr. Retsch-Bogart accomplished all this while being loved by patients and parents for his clinical care and his leadership as co-director of the UNC Pediatric CF Program for 24 years.
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