Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
The Cystic Fibrosis Foundation's network of basic science research centers around the country brings together leading scientists to pool their talents and advance understanding of the basic science of CF and the complex ways the disease affects different parts of the body.
The Cystic Fibrosis Foundation's Research Development Program (RDP) is a network of research centers that brings together top-notch scientists from different disciplines to apply their expertise to the challenges of treating cystic fibrosis.
Since the first RDP center was established in 1982 at the University of Alabama at Birmingham, the network has evolved into 9 basic science research “hubs” around the country. These programs have been instrumental in advancing our understanding of the folding defect of the F508del-CFTR protein, the airway microbiome, and the mucus defect in CF airways.
In addition to fostering a collaborative research environment to advance research into the disease, RDP centers also serve as supply centers that develop and share standardized tools and resources with researchers around the world.
RDP scientists have the opportunity to communicate directly with medical teams at nearby CF Foundation-accredited care centers, gaining firsthand insights into how their work at the “bench” might lead to therapies that will make a significant difference in the lives of people battling this disease.
University of Alabama at Birmingham
Director: Steven M. Rowe, MD, MSPH, Professor of Medicine, Pediatric Pulmonary Medicine, and Physiology & Biophysics
706 MCLM 1918 University Blvd., Birmingham, AL 35294-0005
University of Iowa Director: David Stoltz, MD, PhD, Professor, Pulmonary and Critical Care Medicine
Pappajohn Biomedical Institute, Iowa City, IA 52242
Director: Bruce Stanton, Ph.D., Professor and Andrew C. Vail Professor
615 Remsen Building, Hanover, NH, 03755-3836
University of North Carolina at Chapel Hill Director: Richard C. Boucher, MD, Professor, James C. Moeser Eminent Professor of Medicine, and Director of the Marsico Lung Institute
7008 Marsico Hall, CB# 7248, UNC-Chapel Hill, Chapel Hill NC 27599
Case Western Reserve University Director: Mitchell Drumm, PhD, Professor, and Connie and Jim Brown Professor in Cystic Fibrosis Research
10900 Euclid Ave., 8th Floor, Cleveland, OH 44106-4948
Children's Hospital Medical Center Director: AP Naren, PhD, Professor, Thomas Boat Endowed Chair in Cystic Fibrosis Research, and Director, Cystic Fibrosis Research Center, Division of Pulmonary Medicine
Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229
Nationwide Children's Hospital and The Ohio State University
Director: Karen McCoy, MD, Chief of the Section of Pulmonary Medicine
700 Children's Drive, Columbus OH 43205
University of Pittsburgh School of Medicine Director: Jennifer Bomberger, PhD, Associate Professor, Microbiology and Molecular Genetics
123 University Place, Pittsburgh PA 15213
University of Washington School of Medicine Director: Pradeep Singh, MD, Professor
Health Sciences Building, J187A, Box 357735, 1959 Pacific St., NE, Seattle, WA 98195-7242
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