Network News: Previous Issues

Find previous issues of Network News here. The newsletter is published to help the multidisciplinary teams at our care center networks remain informed about our collective efforts to improve the lives of people living with cystic fibrosis and their families.

What You Need To Know

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Network News: January 2019

Kick off the new year with Network News to learn more about developments in quality improvement (QI), the latest educational resources, and how the Cystic Fibrosis Foundation is working with CF care centers to address food insecurity.

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    Network News: NACFC 2018

    In this issue of Network News, read about the upcoming North American Cystic Fibrosis Conference (NACFC); the new and improved Patient and Family Experience of Care survey; patient education resources to support clinical care guidelines; and the loss of Dr. Peter Durie, a giant in the cystic fibrosis community.

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    Network News: June 2018

    Read the latest edition of Network News to learn more about the quality improvement work being done in Chile, our new Compass marketing video, this year’s Cystic Fibrosis Nutrition and Social Work Consortium award recipients, and updates from the 2018 March on the Hill and Volunteer Leadership Conference.

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    Network News: March 2018

    Read the latest issue of Network News to learn more about building partnerships in cystic fibrosis care, upcoming CF Foundation programs and initiatives, and updates in quality improvement.

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    Network News: January 2018

    Kick off 2018 with Network News to learn more about a new study on health insurance, executive summaries of clinical guidelines, Great Strides, and updates from the North American Cystic Fibrosis Conference (NACFC).

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    Network News: NACFC 2017

    In this issue of Network News, learn more about the upcoming North American Cystic Fibrosis Conference (NACFC), open enrollment, and the latest in quality improvement.

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    Network News: August 2017

    Topics in the August 2017 issue of Network News include partnering in cystic fibrosis care, newly published clinical care guidelines, and new educational resources to share with patients and families.

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    Network News: May 2017

    Read about the Annual Cystic Fibrosis Nutrition and Social Work Consortium award recipients, March on the Hill for Adequate, Affordable CF Care, and the 2017 Therapeutics Development Network (TDN) Spring meeting.

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    Network News: Winter 2017

    Topics in this issue include How the Wisconsin Team Used Data and the Voice of Patients and Families to Improve Care, the Patient Registry’s CF by the Numbers, Stories about Partnerships for Sustaining Daily Care, and an update on Clinical Practice Guidelines.

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    Network News: Fall 2016

    Read about the latest drug expansion, Patient Registry research, Supporting Partnerships for Sustaining Daily Care, and the 2016 North American CF Conference (NACFC) in Orlando.

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    Network News: Spring 2016

    The spring 2016 issue of Network News features coverage of a pilot study to encourage open communication between people with cystic fibrosis and clinicians and the work of the CF Foundation’s Community Partnerships with people with CF and their families.

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    Network News: Winter 2016

    Highlights of the winter 2016 issue of Network News include a story about the Patient and Family Experience of Care Survey, a message from new CEO and president Preston W. Campbell III, M.D. and a report about the launch of CF Foundation Compass.

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    Network News: Fall 2015

    Network News: Fall 2015 focuses on the North American Cystic Fibrosis Conference, the Foundation's “Living Today, Adding Tomorrows” video series and the Dartmouth Institute's selection of sites for its “Coproduction of Care” dashboard.

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    Network News: Summer 2015

    Network News: Summer 2015 features the work of care teams as they prepared for the publications of recommendations for depression and anxiety screening, the publication of the sixth edition of the Managing Cystic Fibrosis-Related Diabetes manual and an update on the Care Model of the Future.

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