Jaclyn Strube

Jaclyn Strube
Mother of a child with CF
Jaclyn-Strube-Headshot

Jaclyn is a mother to Major, who was born with cystic fibrosis. Raised in Des Moines, Jaclyn returned to her home city after attending college in South Dakota. She now works in the insurance industry. Jaclyn has been honored by her company as Working Mother of the Year for Working Mother magazine and was named on Des Moines Business Record’s 40 Under 40 list. She has served as the Foundation’s National Advocacy Co-Chair and currently serves on the Volunteer Leadership Council. You can find Jaclyn on Instagram. 

Blog Posts

Jaclyn smiling with her husband and her son, Major, in front of a football field

With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.  

| 6 min read
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Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's CF journey.

| 7 min read
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Our parenting style wasn't something my husband and I figured out before our son was born. But given all the unexpected challenges CF throws at us, that flexibility has helped us grow as parents, able to change course if something doesn't work.

| 8 min read
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I've written about how tough a decision it was to get my son, Major, a gastrostomy tube. I also wrote about the benefits it has provided. Here's what the process taught me.

| 4 min read
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After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren't prepared for was the difference it made in his health, energy levels, and personality.

| 5 min read