Policy Spotlight

As federal and state governments continue to assess and propose changes to the health care system in the United States, the Cystic Fibrosis Foundation is closely monitoring and engaging on these issues that could impact a person with CF and their ability to access the highly specialized care they need.

What You Need To Know

Blog Post

Preserving Access for People with CF: The Importance of Cost and Affordability

Recent therapeutic advances have transformed cystic fibrosis -- adding decades of life and new hope for people living with this disease. To protect this progress, it’s critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.

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  1. Article

    ICER and CFTR Modulators

    The Institute for Clinical and Economic Review (ICER) conducted an assessment of the clinical effectiveness and value of CFTR modulators including elexacaftor/tezacaftor/ivacaftor (Trikafta®), tezacaftor/ivacaftor (Symdeko®), lumacaftor/ivacaftor (Orkambi®), and ivacaftor (Kalydeco®). ICER last reviewed CFTR modulators in May 2018.

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  2. Article

    Protecting Access to Medicaid for Adults With CF

    Medicaid plays an important role in helping one-third of adults with cystic fibrosis in the U.S. afford the specialized care and treatments they need to stay healthy.

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  3. Resource

    Advocacy News

    Read the latest on the Cystic Fibrosis Foundation’s fight for policies that work toward a cure for CF and help ensure everyone with the disease can get adequate, affordable care.

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  1. Resource

    Take Action Now

    Learn about current advocacy campaigns sponsored by the CF Foundation in your area and how you can engage in these campaigns to make an impact.

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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

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