Our Policy Priorities

With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to high-quality cystic fibrosis care that is affordable and adequate, and support drug discovery and development.

What You Need To Know

Blog Post

What You Need to Know: COVID-19 Vaccine Allocation

The latest information on COVID-19 vaccines allocation and how the CF Foundation is advocating in your state.

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  1. Article

    The Affordable Care Act and Cystic Fibrosis

    In the decade since its passage, the Affordable Care Act has changed the face of health care in the United States, especially in how people with pre-existing conditions, like cystic fibrosis, access and afford care.

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  2. Article

    COVID-19 Triage Plans and Cystic Fibrosis

    As states and health systems prepare for potential surges in COVID-19 cases and increased demand for intensive care, many are creating policies to decide how they will prioritize services and equipment. The Cystic Fibrosis Foundation’s position is clear: Any guideline that unfairly disadvantages people with CF due to outdated information and perceptions is unacceptable.

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  3. Article

    Paid Family Medical Leave and COVID-19: An Overview

    Legislative negotiations are underway for the next relief package to provide additional protections for Americans during the COVID-19 pandemic. The Cystic Fibrosis Foundation implores Congress to expand paid family and medical leave during the COVID-19 pandemic for those at possible high risk and working members of their households.

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  1. Article

    Ensuring Access to Care

    In a complex and rapidly changing health care system, we promote policies that help ensure people with cystic fibrosis have access to high-quality, specialized care so they can live longer, healthier lives.

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  2. Article

    Advocating for Robust Funding for CF Research and Drug Development

    Robust funding for the National Institutes of Health helps ensure innovation in basic research and a full pipeline of cystic fibrosis therapies. A well-resourced U.S. Food and Drug Administration helps advance these therapies, making sure that they are safe and effective.

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  3. Article

    Preserving Access for People with CF: The Importance of Cost and Affordability

    Recent therapeutic advances have transformed cystic fibrosis -- adding decades of life and new hope for people living with this disease. To protect this progress, it’s critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.

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  4. Article

    Statements, Letters, and Regulatory Comments

    By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments submitted from January 2019-to date.

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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

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